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INDIANAPOLIS - IndianaStop -- Last month, the Grand Hall at Historic Union Station in downtown Indianapolis was transformed with western glamor and heartfelt purpose as the INAD Warriors hosted their 3rd Annual INAD Warriors Gala — Boots, Bolos & Bling. The event drew a spirited crowd united in support of families affected by Infantile Neuroaxonal Dystrophy (INAD), an ultra-rare, life-shortening genetic disorder.
The memorable evening was made even more special by the presence of Warner Kays, the courageous young warrior who inspires the organization's mission, alongside his devoted family. Their story beautifully featured in A Day In the Life With INAD-A Day With Warner.
Guests dazzled in their finest cowboy boots and rhinestones while enjoying a captivating performance by Gary West & band, paying tribute to the legendary Johnny Cash with their "For the Love of Cash" show. Other highlights of the evening were silent and live auctions, featuring unique experiences and exclusive items including vacation packages generously donated by local businesses and supporters.
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Thanks to the incredible generosity of corporate sponsors, local donors, and community supporters, this year's gala surpassed all expectations, raising over $85,000. These vital funds will directly support research, awareness initiatives, and provide critical assistance to families navigating the challenges of INAD.
"We are deeply grateful to everyone who joined us in making Boots, Bolos & Bling 2025 an unforgettable night of compassion and hope," said Heather Prentice, INAD Warriors President. "Together, we are advancing our mission to bring light and support to those impacted by this devastating condition."
ABOUT INAD WARRIORS, INC.
INAD Warriors, Inc. is a nonprofit inspired by Warner Kays' courageous journey. The INAD Warriors, Inc. mission is to raise awareness in the global community about infantile neuroaxonal dystrophy (INAD) and the related PLA2G6 gene disorders. Through grassroots fundraising we are empowering the research community to find the first approved treatments to slow progression and potentially one day cure this ultra rare disease.
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ABOUT INAD
Infantile Neuroaxonal Dystrophy (INAD) is an ultra-rare (affects an estimated 1 in 1 million to 2 million children) inherited neurodegenerative disorder. It destroys axons, the part of the neuron (nerve cell) that carries messages from the brain to other parts of the body through the buildup of fatty substances (lipids) on the nerves. In the beginning a child with INAD will appear to be developing normally. But around the ages of 6 months to 3 years developmental milestones will begin to slow down and regress. Some of the first signs and symptoms may be changes in a child's vision, loss of motor skills, and developmental regression.
The memorable evening was made even more special by the presence of Warner Kays, the courageous young warrior who inspires the organization's mission, alongside his devoted family. Their story beautifully featured in A Day In the Life With INAD-A Day With Warner.
Guests dazzled in their finest cowboy boots and rhinestones while enjoying a captivating performance by Gary West & band, paying tribute to the legendary Johnny Cash with their "For the Love of Cash" show. Other highlights of the evening were silent and live auctions, featuring unique experiences and exclusive items including vacation packages generously donated by local businesses and supporters.
More on indianastop.com
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Thanks to the incredible generosity of corporate sponsors, local donors, and community supporters, this year's gala surpassed all expectations, raising over $85,000. These vital funds will directly support research, awareness initiatives, and provide critical assistance to families navigating the challenges of INAD.
"We are deeply grateful to everyone who joined us in making Boots, Bolos & Bling 2025 an unforgettable night of compassion and hope," said Heather Prentice, INAD Warriors President. "Together, we are advancing our mission to bring light and support to those impacted by this devastating condition."
ABOUT INAD WARRIORS, INC.
INAD Warriors, Inc. is a nonprofit inspired by Warner Kays' courageous journey. The INAD Warriors, Inc. mission is to raise awareness in the global community about infantile neuroaxonal dystrophy (INAD) and the related PLA2G6 gene disorders. Through grassroots fundraising we are empowering the research community to find the first approved treatments to slow progression and potentially one day cure this ultra rare disease.
More on indianastop.com
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ABOUT INAD
Infantile Neuroaxonal Dystrophy (INAD) is an ultra-rare (affects an estimated 1 in 1 million to 2 million children) inherited neurodegenerative disorder. It destroys axons, the part of the neuron (nerve cell) that carries messages from the brain to other parts of the body through the buildup of fatty substances (lipids) on the nerves. In the beginning a child with INAD will appear to be developing normally. But around the ages of 6 months to 3 years developmental milestones will begin to slow down and regress. Some of the first signs and symptoms may be changes in a child's vision, loss of motor skills, and developmental regression.
Source: INAD Warriors, Inc.
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